Using your Health Data for Planning and Research

Information about your health and care helps the NHS to improve your individual care, speed up diagnosis, plan your local services and research new treatments. It can also help research organisations to explore new treatments or make discoveries.

You can decide that you do not want your information to be used in this way.

There are two main types;

  • Type 1: Opting out of the GP Data for Planning and Research (GPDDR) Formally known as GPES.

This means you don’t want your data to be extracted from your GP clinical system and used for Planning and Research Purposes. You can opt out at any time but opting out before the end of June 2021 will mean your data is not extracted by the new process. Opting out after that date will mean that no further extractions will occur. For more information, please visit: www.digital.nhs.uk/transparency-notice

Type 2: Opting out of NHS Digital using or sharing your health data (held by any provider, not just your GP), for Planning and Research purposes.

This is a national update and not one that can be done at the Surgery. You can opt out at any time and to find out more information: For more information please visit:  www.nhs.uk/your-nhs-data-matters

For other materials and materials in other languages, please visit www.digital.nhs.uk/supporting-patients-information-and-resources

How do I Opt Out?

To opt out of your data leaving the GP Practice for Research and Planning (Type 1), just contact your GP practice by phone, email or post and let us know. We will add a code to your record that recognise your choice to opt out.

To opt out of your health data being used or shared by NHS Digital (Type 2), you can;

  • Call 0300 303 5678 – Monday to Friday, 9am to 5pm (excluding bank holidays).
  • Write

National Data Opt Out
Contact Centre
NHS Digital
HM Government
7 and 8 Wellington Place
Leeds
LS1 4AP

Email: enquiries@nhsdigital.nhs.uk

Online: www.nhs.uk/your-nhs-data-matters/manage-your-choice/